How do we balance the desire of organizations to harness big data’s power with the need to prevent potential harm to individuals or populations? For health care, MITRE developed a framework to promote the ethical use of consumer-generated lifestyle data.
Guidance developed with FDA outlines preparedness and response recommendations for healthcare delivery organizations and others.
Imagine waiting 30 minutes or longer to get through to a customer service center and when your call is finally answered, you can’t understand what the service representative is saying because you have a hearing impairment. Or you place a call to your doctor but aren’t able to communicate your needs to the medical staff because your speech is impaired. Or you are a child with autism and being in a classroom and interacting with your teacher and classmates overwhelms you with anxiety.
The Patient Toolkit is a mobile application that helps chronically ill patients and their caregivers better manage their illness …